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Quality of life and human difference : genetic testing, health care, and disability / edited by David Wasserman,..., Jerome Bickenbach,..., Robert Wachbroit,...
Livre
Edité par Cambridge University Press - 2005
Extrait de la jaquette : "This volume brings together two important literatures for the first time. One concerns the role of quality-of-life assessments in social policy, and especially in health policy. The second concerns ethical and social issues raised by prenatal testing for disability; a theme of this literature has been the role played by controversial assumptions about the quality of life of people with disabilities." "Hitherto, these two literatures have had little contact with each other. Few scholars have written about both or have compared the two domains in a systematic way, and people with disabilities and disability scholars are underrepresented in recent discussions about health policy and quality-of-life assessment. This book brings to bear the perspectives of disability scholars on issues that have largely been the province of health methodology, policy, and philosophy, while focusing philosophical policy analysis on problems that have largely been the province of disability scholarship." "This volume will be sought after by bioethicists, philosophers, and specialists in disability studies and health care economics."
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